Occular Melanoma!

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Kleftiwallah

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Occular Melanoma!
« on: February 02, 2019, 13:10 »
Sometimes its good being a diabetic!  As such I have my eyes photographed every year to check for:-
Diabetic retinopathy,  one of the most common causes of sight loss among people of working age.
It occurs when diabetes affects small blood vessels, damaging the part of the eye called the retina. When the blood vessels in the central area of the retina (the macula) are affected, it's known as diabetic maculopathy.  People with diabetes should also see their optician every two years for a regular eye test. Diabetic eye screening is specifically for diabetic retinopathy and can't be relied upon for other conditions. 

Anyway, back to me... while looking for the above, the optician noticed a shadow in my right eye and sent me to see the specialist at Bath Hospital.  He in turn sent me to the special specialist at Liverpool Eye Hospital, this is all within the matter of a couple of weeks!
So It transpires I have a mole on the rear face of the right eye.  Technically this is a Large pigmented choroidal lesion with diameter of 6*3DD.  This is a cancerous malignant melanoma about 8mm X 3mm and quite close to the Fovea (a small depression in the retina of the eye where visual acuity is highest. The centre of the field of vision is focused in this region, where retinal cones are particularly concentrated).
To treat it I have to return to Liverpool in early January for more measurements and to have a face mask made to measure,  (Im not that ugly)!  Also to have a brass plate through which the beam is fired cut to the size of the melanoma manufactured.  This is to ready me for  Proton beam therapy where they fire protons (a stable subatomic particle occurring in all atomic nuclei, with a positive electric charge equal in magnitude to that of an electron.) at the tumour to zap and kill it.  Only about 6 people out of a million get this melanoma so Im quite special!

So tomorrow we're up to The Wirral to Clatterbridge hospital on
 Monday for a trial run, then a proton japping each day of the week.  If 'they' don't zap it completely it may escape to my liver, (now how the heck do the nasties know (or find) their way?

There is a possibility that I may lose the sight in my right eye in 18 months to two years even after a complete success.  So keep fingers crossed for me   Cheers  Tony.

I may be growing OLD, but I refuse to grow UP !

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mumofstig

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Re: Occular Melanoma!
« Reply #1 on: February 02, 2019, 14:03 »
O dear Klefti, everything is crossed for successful zapping of the nasty.
Good luck!
Lesley x
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madcat

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Re: Occular Melanoma!
« Reply #2 on: February 02, 2019, 16:11 »
Good luck!  Hoping like mad for you - I have had problems (fortunately fixed now) and understand how much on edge it makes you, however much you trust the professionals.  But it is a risk you have to take ...
All we need to make us really happy is something to be enthusiastic about (Charles Kingsley)

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Goosegirl

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Re: Occular Melanoma!
« Reply #3 on: February 02, 2019, 16:17 »
Having worked in the pathology department that receives tissues from operations I'm aware that malignant melanomas used to be difficult to treat, but there's been such an amazing advance in technology that can almost blast it out of existence. Let's hope it does that for you and please let us know how it goes. GG xxx
I work very hard so don't expect me to think as well!

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mrs bouquet

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Re: Occular Melanoma!
« Reply #4 on: February 02, 2019, 16:34 »
Take care Tony, and good luck.   Please talk to us when you can and tell us your progress.  Got everything crossed for you.   regards  Mrs Bouquet
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Pescador

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Re: Occular Melanoma!
« Reply #5 on: February 02, 2019, 17:02 »
Wishing you all the very best.
Having had some intensive treatment from our dear NHS, I can assure you you're in the best hands.
Keep in touch.
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snowdrops

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Re: Occular Melanoma!
« Reply #6 on: February 02, 2019, 17:04 »
Oh goodness Klefti, that must of been a frightening diagnosis to receive, sending you all my good wishes for a successful outcome to your treatment.
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Aunt Sally

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Re: Occular Melanoma!
« Reply #7 on: February 02, 2019, 17:43 »
Wishing all good fortune to you, Klefti !
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greenjay

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Re: Occular Melanoma!
« Reply #8 on: February 02, 2019, 18:08 »
Fingers crossed for you. x

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Fairy Plotmother

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Re: Occular Melanoma!
« Reply #9 on: February 02, 2019, 19:55 »
Every best wish that all goes well.

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Yorkie

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Re: Occular Melanoma!
« Reply #10 on: February 06, 2019, 20:29 »
Oh my word, how shocking for you!

Hope that all the treatment is as bearable as possible and fully successful. x
I try to take one day at a time, but sometimes several days all attack me at once...

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Missey

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Re: Occular Melanoma!
« Reply #11 on: February 06, 2019, 20:47 »
What an awful discovery.  Thankfully it's been caught and it looks like our wonderful NHS have been swift to act.   Wishing you all the best and a speedy recovery

Missey

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jaydig

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Re: Occular Melanoma!
« Reply #12 on: February 07, 2019, 09:19 »
As a lot of us have said, thank goodness it was discovered early.  Wishing you a very speedy recovery and a positive outcome, and sending you a big hug from me. 

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grinling

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Re: Occular Melanoma!
« Reply #13 on: February 07, 2019, 13:42 »
There is a NHS form which can help with travel costs. Also worth seeing if you can have a car park pass for the hospital.
Good luck

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Aidy

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Re: Occular Melanoma!
« Reply #14 on: February 07, 2019, 17:43 »
Thought I was reading one of our journals for a min  ;)

I have only seen one patient with a similar thing and the outcome was good, back to normal life with very little visual field loss, hope all goes well Klefti, one thing I know is the peeps at Liverpool are good so your in good hands.
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